Southwest Florida PSP Support Group
The first meeting of the Southwest Florida PSP Support Group was
held on Sat. March 31, 2009. Manorcare at Lely Palms was kind
enough to give us a room for our meeting. The meeting was and still
is co-facilitated by Mitch Kanefsky and Cindy MacDonald. There was
six attending that first meeting. They decided to meet the second
Saturday of every month to keep it consistent for everyone. Cindy
MacDonald’s first connection to the CurePSP foundation started when
her mother (with PSP), John (her significant other), and she attended
the CurePSP Awareness Walk in January of 2005. That was the second
walk that organizer Joan Reifler, who lost her husband to PSP, had
The support group came about shortly after Cindy’s mother, Dorothy MacDonald, passed away from complications of her PSP disease. Cindy started getting phone calls from people in the area who also had PSP. They got her number from the CurePSP call registry. She felt like she was being directed to start a support group. The group was her way to help the healing of the loss of her mom. Since she spent the last three years of her life at ManorCare, it was a perfect setting to have the meetings there. Almost nine years later we have supported and educated many wonderful people dealing with PSP, CBD, and MSA.
The support group continues to hold the CurePSP Awareness & Memorial Walk every year. They remember and honor those who have passed on from PSP, CBD, & MSA and raise money for CurePSP.
SUPPORT GROUP FACILITATOR
The group meets on the second Saturday of every month
Due to COVID19, our in person meetings have been canceled.
We now have Zoom meetings the second Saturday of every month.
at 2:00 PM - 3:30 PM
For details contact: Cindy MacDonald