Southwest Florida PSP Support Group


The first meeting of the Southwest Florida PSP Support Group was

held on Sat. March 31, 2009.  Manorcare at Lely Palms was kind

enough to give us a room for our meeting.  The meeting was and still

ico-facilitated by Mitch Kanefsky and Cindy MacDonald. There was

six attending that first meeting.  They decided to meet the second

Saturday of every month to keep it consistent for everyone.  Cindy

MacDonald’s first connection to the CurePSP foundation started when

her mother (with PSP), John (her significant other), and she attended

the CurePSP Awareness Walk in January of 2005. That was the second

walk that organizer Joan Reifler, who lost her husband to PSP, had



The support group came about shortly after Cindy’s mother, Dorothy MacDonald, passed away from complications of her PSP disease.  Cindy started getting phone calls from people in the area who also had PSP.  They got her number from the CurePSP call registry.  She felt like she was being directed to start a support group. The group was her way to help the healing of the loss of her mom. Since she spent the last three years of her life at ManorCare, it was a perfect setting to have the meetings there.  Almost nine years later we have supported and educated many wonderful people dealing with PSP, CBD, and MSA.


The support group continues to hold the CurePSP Awareness & Memorial  Walk every year. They remember and honor those who have passed on from PSP, CBD, & MSA and raise money for CurePSP.






                CYNTHIA MACDONALD

         The group meets on the second Saturday of every month

       Due to COVID19, our in person meetings have been canceled. 

   We now have Zoom meetings the second Saturday of every month.


                                  at 2:00 PM - 3:30 PM

                     For details contact:  Cindy MacDonald

                                 Phone:  239-353-3960